The Spirit of Benny®, a non-profit organization, was created in memory of Benny who passed in 2010 at the young age of 5 from Battens Disease. Benny was passionate about life and he touched the lives of so many with his bear-strength hugs when he was healthier, his sweet smile when he could no longer move or speak. Benny's spirit is powerful still and continues to inspire people to help other families with seriously ill children by supporting the organizations who helped him during his time of need like Make-A-Wish and Give Kids the World, as well as other non-profit agencies that make the lives of seriously ill children and their families, just a little bit more bearable. Within 6 weeks of his family receiving the news that Benny was terminal, Make-A-Wish granted Benny’s family an all expense paid, dream vacation to Disney World in Florida. Thanks to their expediency, Benny was still able to walk a little and most importantly he could still see the magic of Disney. They continue to grant sick kids’ wishes. Give Kids the World was the village where his family stayed during their trip to Disney World, a magical place where Make-A-Wish kids stay with their families while visiting Disney and everything is free!
On March 17, 2012 we had our first Spirit of Benny 5K Fun Run and Walk and raised $5000 for seriously ill children and their families in El Dorado County. In 2013 the run was expanded to include a 10K and since then over $28,000 has been raised. We are grateful for all our generous sponsors, donors, and participants who have helped make this happen. The 6th Annual Spirit of Benny 10K/5K Fun Run and Walk will be March 18th, 2017 to help Make-A-Wish grant wishes right here in El Dorado County. We invite you to come join in on the fun as we are planning quite a celebration this year!