The Spirit of Benny®, a non-profit organization, was created in memory of Benny who passed in 2010 at the young age of 5 from Battens Disease. Benny was passionate about life and he touched the lives of so many with his bear-strength hugs when he was healthier, his sweet smile when he could no longer move or speak. Benny's spirit is powerful still and continues to inspire people to help other families with seriously ill children by supporting the organizations who helped him during his time of need like Make-A-Wish and Give Kids the World, as well as other non-profit agencies that make the lives of seriously ill children and their families, just a little bit more bearable. Within 6 weeks of his family receiving the news that Benny was terminal, Make-A-Wish granted Benny’s family an all expense paid, dream vacation to Disney World in Florida. Thanks to their expediency, Benny was still able to walk a little and most importantly he could still see the magic of Disney. They continue to grant sick kids’ wishes. Give Kids the World was the village where his family stayed during their trip to Disney World, a magical place where Make-A-Wish kids stay with their families while visiting Disney and everything is free!
On March 17, 2012 the first fundraiser, The Spirit of Benny 5K Fun Run and Walk was held and raised $5000. In 2013 the run was expanded to include a 10K and was able to raise $10,000. We are grateful to all our sponsors, donors, and participants who have helped make this happen! The Spirit of Benny® plans to continue this event annually. The 4th Annual Spirit of Benny 10K/5K Fun Run and Walk will be March 21st, 2015. Please stay tuned for new family friendly fundraising events and an online store with fun goodies to support the cause of helping sick children and their families!